Hidradenitis Suppurativa USA

HS-USA

News Post New Entry

January 2011 Update. 


While the month is not yet over, we have experienced the loss of two of our members. 

Jim Cotz passed away this month.  Jim was a very active memeber of the HS community. He brought a smile to the face of many, and faith that things would get better.  Jim passed away after a long battle with skin cancer.  He will be sorely missed. Please remember Cecilia, Jims wife, and his sons in your thought and prayers. 


We learned this week that Tammi Ferris passed away last Wednesday.  Many of you knew Tammi as the compassionate and sympathetic voice on the other end of the HS=USA support phone. Please remember Tammi's family in your thoughts and prayers as well. 

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HS Documents

Posted by rick on June 3, 2012 at 8:35 PM Comments comments (1)

I am working on setting up the Documents Section as a respository for HS Clinical Trials, Research, Studies and related information and documentation.  If you have any documents that we can add to the Repository, please forward them to me and I will include them. 


Thanks


Rick H.

New HS Reference

Posted by rick on May 27, 2012 at 11:40 AM Comments comments (0)

Here is a new link to some work going on in France. There is also a good summary of a number of Clinical Trials.

https://www.facebook.com/notes/afrh/publications-m%C3%A9dicales-de-2012/10150587726237809

Rick H.

New Clinical Trail for Humira

Posted by rick on April 28, 2012 at 11:40 AM Comments comments (9)

NEW CLINICAL TRIAL!!! folks, here is the contact information for a new clinical trial for Humira. Call them if you are interested

Hi Rick,

Thanks for the call, sorry I was unavailable. The study we are conducting is in Troy, Michigan. It is listed on clinical trials.gov, study NCT01468207 if people want to see it there.

This is a research trial for adults with HS in at least 2 areas (both underarms or one underarm and one other a...

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HS Study

Posted by rick on January 24, 2012 at 3:40 PM Comments comments (6)

Category: Skin

Reference Number: 09-0725

Date Posted: 04/05/2011

 

Keywords:

hidradenitis, boils, abscesses, Nagele, 09-0725

 

WHAT IS THE PURPOSE OF THE STUDY?

The goal of this study is to find out what causes hidradenitis suppurativa. Hidradenitis suppurativa is a chronic skin disease characterized by recurring abscesses (boils) most commonly found under the armpits and in the groin area.

 

WHO IS NEEDED?

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HS and Genetics

Posted by rick on May 15, 2011 at 3:34 PM Comments comments (19)

I have posted this as an informational item only. We are attempting to vet this information for its authenticity. Once we have verified the information I will add it to the appropriate catagory.

http://www.2n2u.com/2011/03/confirmation-by-exome-sequencing-of-the-pathogenic-role-of-ncstn-mutations-in-acne-inversa/

Depending upon how you read this, there is some implication by the author that a "cause" for HS has been found in the geneome.  If this proves to be true, then the ...

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