Hidradenitis Suppurativa USA

HS-USA

News Post New Entry

HS Study

Posted by rick on January 24, 2012 at 3:40 PM

Category: Skin

Reference Number: 09-0725

Date Posted: 04/05/2011

 

Keywords:

hidradenitis, boils, abscesses, Nagele, 09-0725

 

WHAT IS THE PURPOSE OF THE STUDY?

The goal of this study is to find out what causes hidradenitis suppurativa. Hidradenitis suppurativa is a chronic skin disease characterized by recurring abscesses (boils) most commonly found under the armpits and in the groin area.

 

WHO IS NEEDED?

Adult patients diagnosed with hidradenitis suppurativa

 

WHAT IS INVOLVED IF I PARTICIPATE?

Duration:1 outpatient visit, approximately 30 minutes in length

Tests/Procedures:blood or saliva sample, physical exam, and questions asked

Risks:Risks will be discussed with volunteers as part of the informed consent process.

Benefits:There are no direct benefits. This research may create new tests, treatments, or cures for people with hidradenitis.

Compensation:A $10 gift card for time and effort is provided.

 

WHO IS THE PRINCIPAL INVESTIGATOR (DOCTOR)?

NAGELE, PETER, MD

660 South Euclid Avenue

Campus Box 8054

Saint Louis, MO 63110

 

WHERE WILL THE STUDY TAKE PLACE?

Washington University School of Medicine

 

 

 

Contact Information:

Peter Nagele, M.D.

3143625129

[email protected]

 

*** We encourage you to register with the RPR to be considered for additional or future trials that

you may qualify.

 

Categories: None

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6 Comments

Reply ljp5050
1:16 PM on May 19, 2014 
I would like to go to the study in Saint Louis, MO but i live in California. MY husband has a rare disease and he got to fly to Chicago round trip air/hotel/food all paid for. Is there such a program available for this study?? Lavona
Reply Mellissa
3:46 PM on January 16, 2014 
I live in Florida and they were doing a study for HS and I agreed to sign up. I traveled 21/2 hors to go to do blood work, test, paper work 4 different times. They provided me with a log pad that would ask questions daily. I went for the drive yesterday to get the first treatment and was told I didn't put in eneough diary time. So all the driving I did, and all test came back great. I was told I can't do the study because I missed a couple of times on the diary. I am furious with this study.. Do they want real people that have suffered with this disease or do they just want to waste millions of dollars to find not to many people could go through this!!
Reply KELLY
2:37 PM on February 1, 2013 
WHAT DOES " RPR" MEAN? AND WHERE ARE THEY LOCATED?
Reply Tabatha
10:03 PM on July 21, 2012 
i wish i lived closer if it was near me i would definately be there
Reply sb123
9:07 PM on April 25, 2012 
wish I lived in the Washington area to be a part of this study! Hope the results give us sufferers some well deserved answers
Reply steph8578
1:24 PM on April 13, 2012 
i wish i lived closer!~