Hidradenitis Suppurativa USA



Joined May 18 2014
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61 years old
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Hidradenitis Suppurativa USA

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Hi, well im getting old now! 57 years old on the 20th! Wow time flies and HS flies along with it! Been suffering from this horrid disease for about 30 years now. It has progressed and daily living is just difficult! I try so hard to fight the black depression hole i get in. That is so hard! My family went to the coast this weekend and i stayed home. Just to darn painfull to go anyhwere like that. My family does not understand, how could they really. I've been married now for 38 years and this past 10 years have just gone downhill. We lost our place in the mountains and moved into a garage at my daughters. That is tough! He stays out here, hogs the PC, i stay inside and sleep on a twin bed. Since all this stress of loosing our place and other family drama i think it has contributed to my hs getting worse. I go on the 21st to see 2 plastic surgeons. I am so sick, i get new abcesses daily, literally! I feel so bad for anybody that has to endure what HS hands out to them! Well, im glad to join in, i really need support! Thanks:)

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1 Comment

Reply Kathie
1:38 PM on August 16, 2014 
I am really sorry to hear about what you are going through. No one who has not had HS understand. I had surgery a couple of years ago. It was pretty extensive and I think my husband has a better understanding. He was always supportive but when he actually saw it well it made a difference. What I'm trying to say it to not give up. We all take quite a bit pain on a daily basis but it's important not to give up. Welcome to the website!