Hidradenitis Suppurativa USA



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Joined Jun 29 2010
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Hidradenitis Support
Hidradenitis Suppurativa USA

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Reply Kathie
4:42 PM on August 30, 2014 
Hi Rick,
Thank you so much for doing this website. I come on every once in a while looking at information and looking for "friends" but I haven't had very much luck with that. Do you know of anyone else on this site that is looking for the same thing? I have asked many people in my state to be friends but most haven't been online for a couple of years. I was hoping you could help. If not that's ok. You are still doing a great thing!
Thanks, Kathie
Reply Alina
11:08 PM on September 5, 2013 
Hello -- been here a while, actually. Was just wandering around to level of activity. How have you been Mr. Webmaster? I have a question as well. Can we delete friends? If so, how? Thank you.
Reply sue gorman
1:02 PM on May 23, 2013 
Rick ,
Hi I have some new info regarding Dr Paul Hazen of the HSI in Clevland Oh. I just got home from my first visit with him. I drove 5 hours each way to see him and was very happy with the way they help HS patients. If you want to update his info on your doctors page I have phone # and some general info. I hope this would help fellow HS patients.
Reply Dee
12:32 PM on February 9, 2013 
Thank you for posting the link to 'http://www.aboutcancer.com/hidradenitis_suppurativa_rvw_utd.htm'
. It is a very interesting read and provides a little more hope knowing that there are people out there trying to understand HS better and hopefully that will result in a cure someday :-)
Reply Texas2step
9:16 PM on October 30, 2012 
Hi Rick ! Penrose, huh? I love that area of Colorado ! We have a cabin in Hartsel....and a son in Colorado Springs too. Thanks for accepting me into this group. This site looks to hold a wealth of information. I am looking foward to getting into the forums, Thanks!
Reply Kelly
3:59 PM on August 20, 2012 
Hi Rick
I am new to this site. From reading comments by FoxTrot, I guess I should hurry and put more in my profile before he reads it! LOL. He sounds like a pretty fun guy... It's already pretty evident how much all of our stories (nightmares) are so unfortunately the same. I suffered for 20 years before being diagnosed, had tons of useless medications pushed on me and many hurtful (rude) suggestions.
Reply FoxTrot
12:23 AM on May 25, 2012 
Your profile is a bit lacking sir. . Spruce it up a bit? Put at least 12 paragraphs stating how awesome yours truly is? My doc says a bit of me is the Best medicine! .....probably because he doesn't know what the hell else he's doing. :D
Reply Dee
11:21 PM on May 8, 2012 
Hi Rick, thank you for the hug in your response on the forum post. Even though it was a simple virtual hug, it made me smile and brought warmth to my heart! :-)
Reply srg43
8:37 PM on May 8, 2012 
Hello Rick my name is Steve new to the group just wanted to say Hi
Reply robin
4:38 PM on December 31, 2011 
Hi Rick..acutally my daughter (14) has HS. She has been seen by medical professionals at children's hospital in Phila. They have given her all kinds of tests..to rule out Crohn's Disease. She has severe lesions and tunnels in arpits as well as some in groin area. She will undergo surgerty this Wed (3rd) to remover the deep bad tissue and to do a skin drafting. She is very worried and so am I. However the thought of her continuing with this disease is worse. children's hospital has one of the best children's plastic surgeon who has done this procedure before. I am believing for a favorable outcome for my little girl. Lord knows she cannot go on like this. Robin
Reply ArmyWife
2:49 PM on December 11, 2011 
Oh yes, we bought a house here with property actually. We love this area, it's absolutely beautiful. And ty on the congrats for Doctor Norris, I dunno if it was you who called or my call or the email I sent to him before I talked to you but it's comforting to know that I am going to be receiving the care I need and potentially betterr care than I was receiving back in TN.
Reply Julie/Aliens
3:13 PM on September 30, 2011 
Hi Rick,
I have to say that I really like this new site. I have not been on here for years and I remeber the old site was not as user friendly as this one is. I am having such an easier time maneuvering around to find information. I am so happy that this is available for us sufferers. Thank you, Julie
Reply FoxTrot
12:49 AM on May 16, 2011 
Sorry bout that, FoxTrot is the only dance I know and am good at, just sort of stuck as far as social networking. :p It's John. I really appreciate the site you have here. I sort of monitor the posts and actually found this site because of your post on the Yahoo HS Men group that I joined about 6 months ago, maybe?

That does suck though, I'm sorry it took them so long to diagnose you. I'm sure I don't have to go in how every single doctor I went to MIS-diagnosed me with everything from, 'Oh it's just acne, you'll grow out of it.' to the C word.

And yes, I have gotten on the tumeric since I joined the Yahoo group, I think it was because of you that I started on it. Many Many MANY thanks! ......it seems though that it doesn't kill it off completely, which wasn't one of the conditions in trying it anyway, but it still helps sort of on a regular basis. First time I tried it I didn't have a flare up in 2 weeks and I thought I burnt it out.......ate curry for a week, which is pretty much nothing but tumeric, which I also might add is the most disgusting spice known to man, in my opinion.

Don't want to fill up your entire comment wall with my babbling, should probably just throw it in my profile. Thanks again for all the information and support you've offered, you guys have been nothing but a wealth of information and support.

Reply Rosebud
7:59 PM on January 29, 2011 
Hey Rick :-) Site looks lovely. Good job