Joined Feb 28 2011
I really believe there is hope for this horrible disease. Better still, the answer appears to be non-prescription, non-surgical, in fact... quite non-medical. It looks like it is about what we eat, meaning the power is in our hands.
It isn't easy, it isn't super convenient, but it appears to be possible and on every day I used to suffer I would have eaten almost anything short of broken glass to make it go away. For me, and others, the problem appears to be 'Leaky Gut Syndrome' and the answer is an Auto Immune Proticol approach - Google it, read everything, especially Tara's story at Primal Girl http://primalgirl.com/about/ , heck download her book and read that... aside from self-loathing, despair, pain, embarrassment and the smell, what have you got to lose?
The best thing is, if all this info is wrong (it's not) and you don't improve, you've spent nothing but time and you wont be worse off. (Tara's book The Hidden Plague: A Field Guide For Surviving and Overcoming Hidradenitis Suppurativa, isn't free at roughly $20 for the Kindle version, but it was sooooo worth it).
Good luck - there is hope!!